Welcome to the Congress for Patients podcast

An educational initiative dedicated to delivering the latest insights from a congress to Australian patients and caregivers. In this series, our focus is on cancer-related topics presented at the American Society of Clinical Oncology, ASCO 2023 conference.

But hold on, this isn’t just another podcast…

It’s a joint initiative brought to you by Humanise Health, MedWise consulting,
and our dedicated Congress For Patients team, working hand-in-hand with leading Patient Advocacy Groups, patient advocates, and healthcare experts from the cancer community, with generous support from our sponsors.

Our mission? To empower you, the patient and caregiver, with the easily digestible information you seek, presented in a language that resonates with you.

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Get ready for an exceptional lineup of 8 episodes, each personalised to your needs. Our episode topics cover a wide spectrum including key updates on breast and gynecological cancers, integrative oncology, improving access to clinical trials, shared decision making, DNA testing, survivorship, and addressing the complexities of brain metastases. And for our Chinese-speaking audience, we have prepared a special episode exclusively for you.
You will find additional patient support resources and valuable links on this website.
Our hope is that these episodes not only inform but also inspire and empower you on your unique journey. We’re here to serve you and would love your feedback.

So, without further ado, tune in to find out what it means for you!

Episodes

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Trailer

Season trailer for the Congress for Patients podcast

Welcome to the Congress for patients podcast, an educational initiative dedicated to delivering the latest insights from Congress to Australian patients and caregivers. In this series, our focus is on cancer-related topics presented at the American Society of Clinical Oncology, or ASCO as they call it.

But hold on, this isn’t just another podcast. It’s a joint initiative brought to you by Humanise Health Pharm Sciences, our dedicated Congress for Patients team.

We worked hand in hand with leading patient advocacy groups, patient advocates, and healthcare experts from the cancer community to empower you, the patient and caregiver with easily digestible information you seek presented in a language that resonates with you.

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Introduction

Q&A with Krystal Barter & Matthew Britland

It’s no secret that cancer patients and caregivers have been kept in the dark for too long. While there are plenty of conferences, both locally and globally, these are designed for medical professionals and researchers and not the patients themselves.

With this series of podcasts, we want to change this! We’ve created this series to be totally patient-focused so that you can learn as much as you can about your condition and the types of options that are available for your treatment.

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1. Survivorship

With Dr. Andrea Smith & Dr. Sandy Minck

  • How can we improve care after cancer treatment (survivorship)?
  • Substantial gaps remain in many survivorship care delivery models, specifically when patients leave the cancer center after active treatment. The core domains of cancer survivorship care delivery encompass:
  • Recurrences and new cancers
  • Management of physical/psychosocial effects and chronic conditions
  • Health promotion and disease prevention
  • Closing the Loop: Identifying, Assessing, and Meeting the Needs of Survivors and Providers. Alternate models of care led by primary-care providers or oncology nurses, or care shared between oncology specialists and primary-care providers appear to be as effective—and may offer other benefits.
  • There is a move towards pathways focussed on self-management
  • Perspective of a survivor of cancer – What might work?

Featuring

Dr Andrea Smith
Patient representative and advocate – breast cancer Andrea is a consumer-researcher and Research Fellow at the Daffodil Centre, a joint venture between the Cancer Council NSW and the University of Sydney. Her research focuses on improving supportive care for people living with advanced or metastatic cancer, in particular metastatic breast cancer. Her interest in this area is informed by her own lived experience of being diagnosed with stage IV metastatic breast cancer in 2016. She works closely with Breast Cancer Network Australia as a trained consumer representative and advocate and with several other breast cancer organisations in Australia and internationally.
Dr Sandy Minck
Congress4Patients Medical Project Lead Sandy trained and worked as a General Practitioner from 1990-2000. Since then, she has been involved in medical education and communication roles. Sandy is an advocate for breast density awareness and notification, and personalised breast cancer risk assessment. She is passionate about patient empowerment and informed, shared decision-making.

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2. Brain Metastases

With Dr. Fiona Hegi-Johnson

Dr. Hegi-Johnson explains what brain metastases is along with some key facts, signs and symptoms to be aware of, how patients can adopt multi-disciplinary team (MDT) approach with their HCPs in managing brain metastases, who comprised a MDT, and some key updates on treatment and techniques discussed at ASCO.

  • How can we best manage secondaries in the brain from lung cancer?
  • There’s term like “Scanxiety”, referring to the anxiety experienced during scans and treatments and how to overcome.
  • What are some potential symptoms patients with brain metastases may experience, and to look out for?
  • The role of a multi-disciplinary team (MDT) including a radiologist, pathologist, medical oncologist, specialist nurse and wider when managing brain metastases.
  • Key takeaways from this ASCO session

Featuring

Dr. Fiona Hegi-Johnson
A Radiation Oncologist at Peter MacCallum Cancer Centre and Senior Research Fellow at the University of Melbourne, specialises in treating lung and breast cancer patients, with expertise in stereotactic ablative body radiotherapy (SABR). She chairs the Trans-Tasman Radiation Oncology Lung Subspecialty Group and leads clinical trials in lung cancer. Her research, supported by a Victorian Cancer Agency Fellowship, integrates PET tracers to personalize radiotherapy, collaborating with experts from various institutions. Dr. Hegi-Johnson is a Conference Chair for the IASLC World Lung conference 2023 and a Board Director for TROG.

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3. Shared Decision Making

With Dr. Yeh Chen Lee & Caitlin Delany

How can patients be better involved in deciding about their care?

  1. What Shared decision making is, and is NOT; and a discussion on the different types of SDM and how they need to be targeted to the type of problem the patient presents with.
  2. The use of digital tools to advance SDM in germline genetic testing.
  3. The doctor as patient perspective – the double edged-sword of open access medical portals.

Featuring

Dr Yeh Chen Lee, Medical Oncologist
Dr Yeh Chen Lee, medical oncologist and clinical trials investigator, subspecialising in gynaecological cancers and soft tissue sarcoma. She currently works at Prince of Wales Hospital, Royal Hospital for Women and Chris O’Brien Lifehouse. Her research focus is to improve patient care in cancer, through advancing and translating knowledge in cancer genetics, drug development and supportive care.
Caitlin Delany, patient representative and advocate – ovarian cancer
Caitlin is the founder of CareFully, which empowers and trains healthcare professionals to deliver compassionate care. This was after a diagnosis of stage 4 clear cell ovarian cancer in 2017, becoming ‘the patient’ herself, and witnessing first-hand the impact of compassionate care (and lack thereof). With a 20+ year career as an embryologist, including establishing and managing leading IVF and Sperm Donor clinics in Australia and Europe, Caitlin has a unique dual insight as a healthcare professional and patient. Her advocacy work includes key roles in numerous professional and patient advocacy organisations and inspiring presentations, including to the Prime Minister. Caitlin is passionate about timely, effective, supportive care for ALL cancer patients. She campaigns for funding and treatment equity and is especially interested in genetic testing and personalised medicine, as such treatment is currently prolonging her life.

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4. Access to clinical trials

With Dr. Abhijit Pal

Hear from Dr. Pal discussing what is clinical trial, how can patients benefit from participating in trials, what do they need to be aware of, what are some of the barriers affecting access to clinical trials, what are some of the key global and Australian initiatives to make clinical trials more available to patients, what resources are available to help patients navigate this discussion with their HCPs.

  • ASCO 2023 Presidential theme: Partnering With Patients, the Cornerstone of Cancer Care and Research
  • Clinical trial 101 – how can patients benefit from it, how can they access them, what do they need to be aware of?
  • Barriers affecting access to clinical trials
  • What current global and Australian initiatives are there to address these barriers to make clinical trials more available to patients?
  • Useful resources and tools better understanding and accessing clinical trials

Featuring

Dr Abhijit Pal
is a staff specialist medical oncologist working in South Western Sydney Local Health District and has a focus on thoracic and genitourinary malignancies. He is in the final stages of a PhD funded by an NHMRC scholarship and through University of Sydney looking at improving informed consent for early phase clinical trials and also improving diversity on cancer clinical trials. He has completed a two year fellowship at the Royal Marsden Hospital Drug Development Unit in London.

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5. Integrative Oncology

With Dr. Vanessa Brunelli

Integrative/complementary therapies in cancer care

  1. How to incorporate integrative oncology into patient care
  2. Mind-body approaches to help cancer survivors
  3. Appropriate use of dietary supplements before and after cancer treatment

Featuring

Dr Vanessa Brunelli, Senior Research Fellow, University of Wollongong
A long clinical background in oncology nursing drives Vanessa’s strong research interests in improving outcomes for people affected by lung cancer. Vanessa’s research program, which is central to the evidence base on the role of the advanced practice nurse and how this role might best support people with lung cancer, has shaped Australian cancer health workforce policy and practice. She is the Chief Investigator of the Lung Foundation Australia Specialist Lung Cancer Nurse National Demonstration Project.

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6. DNA Testing

With Dr. Fran Boyle

Some key takeaways from ASCO 2023 in relation to DNA testing in cancer screening, diagnosis and care.

  • Redefining early-onset cancer and risk of hereditary cancer predisposition
  • Effect of germline mutations on somatic alteration landscapes in BRCA-associated cancers.
  • Clinical germline and somatic sequencing: causation versus association
  • The future of liquid biopsies – circulating tumour ctDNA, circulating free cfDNA

Featuring

Prof Fran Boyle AM, Medical Oncologist
Fran is a Medical Oncologist based at the Mater Hospital in North Sydney. Her main area of practice is in Breast Cancer Care. She is a Professor at the University of Sydney where she is the current Director of the Pam McLean Centre. Her experience in communication and supportive care research and training spans 25 years, and she works closely with Breast Cancer Network Australia in advocacy and education.

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COMING SOON...
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7. Key Breast / Gynaecological cancer topics from ASCO

With Dr. Yoland Antill

Dr Yoland Antill shares her top 5 ‘game-changer’ Breast & Gynae Cancers takeaways from ASCO 2023:

  • SHAPE trial: Cervical cancer surgery
  • SEER database: small node-negative HER2+ breast tumours
  • SONIA trial: CDK4/6 inhibitors for patients with HR+, HER2- ABC
  • Ovarian ablation or suppression on breast cancer recurrence and survival
  • SOFT trial: PAM50 intrinsic subtypes and ROR scores in premenopausal women with HR+ EBC

Featuring

A/Prof Yoland Antill
Medical Oncologist and Cancer Genetics specialist, Australia and New Zealand Gynaecological Oncology Group (ANZGOG) Research Advisory Committee. A/Prof Antil is a Melbourne-based medical oncologist and cancer genetics specialist within the public and private sectors with over 20 years of experience in each discipline. Her working and research interests are in the management of breast and gynaecological cancers together with hereditary cancer syndromes. Yoland is Deputy Chair of ANZGOG’s Research Advisory Committee and a member of the Uterine Cancer Tumour Working Group.

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8. 美国临床肿瘤学会要点

李业珍医生

Dr. Lee discusses key messages from the Top 5 patient chosen topics from ASCO 2023 and what it means for patients, in Chinese. 我们将一起讨论患者投票表决的五大热门议题,探索它的重要性以及对患者的意义,并为您提供相关的资源和指导。

 

  1. Integrative Oncology综合肿瘤学
  2. Improve Access to Clinical Trials临床试验
  3. Shared Decision Making医患共同决策
  4. DNA testing基因测试
  5. Survivorship癌症倖存者

Featuring

Dr Yeh Chen Lee, Medical Oncologist
Dr Yeh Chen Lee, medical oncologist and clinical trials investigator, subspecialising in gynaecological cancers and soft tissue sarcoma. She currently works at Prince of Wales Hospital, Royal Hospital for Women and Chris O’Brien Lifehouse. Her research focus is to improve patient care in cancer, through advancing and translating knowledge in cancer genetics, drug development and supportive care. 李业珍医生是妇科癌症和软组织肉瘤的专家,目前在Prince of Wales Hospital, Royal Hospital for Women和Chris O’Brien Lifehouse担任医生。

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